Share the Journey: Mind, Body and Wellness after breast cancer enables a medical research study that aims to understand the symptoms after breast cancer treatment, why these symptoms vary over time, and what can be done to improve them. Sage Bionetworks, a 501(c) (3) nonprofit research organization, invites you to volunteer in a new approach to monitor health in women using mobile apps.
Share the Journey will use questionnaires and collect phone sensor data to track five common symptoms of breast cancer treatment that can persist even after active treatment ends: fatigue, mood and cognitive changes, sleep disturbances, and changes in exercise. The app will allow you to track these symptoms and others of your choosing, review trends, and provide your insights to researchers and the breast cancer community about how your symptoms might change day to day.
This study is unique in that it allows participants to step up as equal partners in both the
surveillance and management of their symptoms as well as in the research process. We are recruiting women between the ages of 18 and 80 to participate in the study - women without a history of cancer will play an important role in the study as well.
- Record and track your daily symptom variations through a fast and simple interface
- Contribute to a diary about your day
- Share insights and partner with researchers
- Get educated about breast cancer treatment and symptoms
- Import daily physical activity measurements from the Apple Health app
To join this study you need to be a woman resident of the U.S over 18 and under 80 years of age. Share the Journey may use data stored on the Apple Health app with your permission to:
- Count the number of steps running and walking that you do each day
- Track your sleep
- Record your birthdate, height, and weight
Share the Journey will send reminders to answer quick questions about your daily health as well as provide diary and survey information.
Download Share the Journey and join us as a breast cancer research partner.